Mitochondrial/Metabolic Parent Group
Are you feeling overwhelmed? Do you want to learn more about a disease you can't even pronounce? We are all in the same boat. Our families have children affected by mitochondrial/metabolic disorders.
We have formed a support group in the Cincinnati/Northern Kentucky area. We will meet several times a year. At these meetings, we learn from each other about ways to help our families and ensure treatment. The meetings are informal and relaxed, with no pressure to talk. You will find, as we have, that other parents prove to be your greatest support.
We also will have a monthly e-mail newsletter. If you do not have an email address, we will send it out through postal mail.
Over the next year, we hope to have guest speakers (on topics ranging from therapies to insurance needs) at the support meetings. We plan to have a yearly family gathering for all the families, including all family members, extended family members, and any friends who would like to attend. We also hope to establish an annual fundraiser. Without funding there is no research, and without research there is no cure.